Bevan and Devon

The nurse we had on Sunday night in the hospital was awesome and assured us that she would get us home ASAP. She walked us through everything that we would need to do immediately Monday morning (getting home health in place, calling insurance, having meds ordered, supplies delivered, etc.) and we got to it first thing.  I was talking to so many people to get everything in place the entire day Monday that I felt like I barely had time to pay attention to Elizabeth. My head was spinning...school coordinators, pharmacy, insurance, case managers from oncology and rehab…and I was still working on all of the meds as we were driving home at 7pm. The meds were soo stressful! This post is my big thank you to Bevan and Devon in pharmacy. Bevan went way above and beyond in getting Elizabeth’s meds set up. There is a specific shot that Elizabeth needs that insurance companies don’t like to pay for outside of the hospital. When I found this out Monday late morning, one of the case managers told me that I was going to need to drive Elizabeth back up to Primary Children’s every day this week for this shot (which is 2 hours out of the very few days we were getting home) and when Bevan in pharmacy found out she was not backing down. She called insurance multiple times and had me call multiple times (even when I was ready to give up) and walked me through exactly what to say to make this happen. I am SOOO grateful! It was hours of effort on the phone, but tremendously worth it because now I can stay home all week. Once we got home and I was going to give Elizabeth her med for nausea, we found out that the one that really works well for her is yet, another, of the meds that insurance doesn’t like to pay for outside of the hospital and they had filled an order for a similar med that we had tried, but didn’t work as well for Elizabeth. We’d been tweaking meds for nausea the many days we spent in the hospital and knew that this was the ONE that for sure completely works for her. I called the Primary Children’s Pharmacy close to 9pm and this time Devon was the one who assured me that he would get this med to us and find a way to get it close to home. He did! Dave was able to race to one of the few pharmacies that stock this med just 15 min from our house and arrive just in time before closing. I could tell 50 stories just like this of people doing “little” things that were so huge to me, to our family, and to Elizabeth in these last few weeks. (THANK YOU EVERYONE!) I’m honestly still in shock that we got everything in place, but we did. Physical therapy came to our house today, Occupational therapy came to our house today, her shots were delivered on rush status to our house today, a nurse came and drew blood to take care of her needed labs for the day, and I can’t remember when it was last so beautiful to just be HOME. (Yes, this, after months of quarantine…I love BEING HOME.) I was here when kids got home from school. Elizabeth sat on the couch in our living room and relaxed. My family was all together at home and it was a wonderful day.