Good days, new plans, more chemo

Elizabeth's had a pretty good last 5 days and was able to practice walking and spent lots of time painting. She did some fall pictures in watercolor and one on canvas. (Thanks Ella and Alanna!)  Even though she felt good last Thursday, her blood counts remained so low that I was worried that she would have to delay chemo for a week. Thankfully, the daily shots she gets finally kicked in and her blood levels looked great by Sunday. Sunday afternoon she was able to enjoy great family time with Grandparents, uncles, aunt, and darling baby cousin. My favorite was watching her plays games around the table with her dad, uncle and siblings. She told me that she had a really fun day that evening. (Thank you amazing family! We love you!) Yesterday morning we had to get her up early for her radiologist appointment at the Huntsman Cancer Hospital and hospital admission for chemo. We learned at our appointment yesterday that the radiologist thinks that proton radiation is the best option for treatment on her spine. They don't have this option in Utah, so he's consulting with a proton radiation doctor in a nearby state that he's worked with extensively to see if this doctor agrees.  We should find out next week if we will be getting some treatment out of state. (I'll fill in the details once we know more.) The radiologist would like to do 6 weeks of radiation therapy for her spine from mid December until the end of January (during chemo) and then she'll get the lung radiation treatment for 2 weeks once chemo is complete. They use photon radiation on the lungs and we will for sure be getting that at the Huntsman. After the radiology appointment, we checked in at primary children's hospital. She was much more hydrated than on her last admission (yay!) and this is critical to the chemo treatment and means that she didn't have to wait hours for them to run IV fluids before starting treatment. Having her port accessed is still very stressful for her and I hope this improves. Her nausea control has improved, as we've learned a lot about what works for her, and they kept her nausea under control yesterday. She's got one more chemo treatment around 2pm today and then we should be good to head home close to dinner time. Good friends are keeping my family at home well fed, having my kids over to play, and running them to their various lessons and to and from school so Dave can continue to work. Thank you wonderful people!! I've said it before and I will keep saying it...we couldn't do this without your prayers and support!! Love you all💕