Thursday, October 1, 2020

One week

One week ago at almost exactly this time Elizabeth was coming out of spinal surgery. We're so grateful to have the stress of that behind us! She's come a long way! She's now getting therapy on the rehab unit in Primary children's 4 times throughout the day for a total of 3 hours. She just came back and she's exhausted. She's working on basic things (like getting dressed) as well as the big goal of walking. Right now she stands with a walker & support. We've gotten some test results back and it's all what we were hoping to hear--the bone marrow biopsy was clear and no other cancer was detected in other bones or in other organs. (We already knew that she had a few spots on her lungs and in her L4 vetebral bone.) She's eager to come home, (and we're all eager to get her there) so tomorrow we plan to talk to therapy and nursing teams to see what we need to do to get her there. The days are long and challenging, but not a day has gone by since this began without one or many people reaching out in a special way. Thank you!!