Back to it...

After a wonderful Thanksgiving weekend, Elizabeth's had an intense last few days. She had a 5 hour appointment at the Seattle Proton Center on Monday, went straight to the airport, arrived home that evening for her home health appointment, and is back today at Primary Children's getting chemo. (Thankfully, it's her 2 day chemo round.) The main part of our Proton Center visit was getting her custom radiation bed made. This process was similar to having an MRI, but involved a lot of repositioning as she was moved in and out of the machine, molding a bed beneath her with laser alignments, and even getting 2 pin point tattoos to ensure that her back is lined up perfectly for her radiation treatments. She’s done with chemo for today and has miserable with her nausea for the last several hours. It’s so frustrating how fast it gets out of control. What we didn't know is the one of the meds that is most helpful for her nausea (IV dexamethasone) is now in shortage because it was recently discovered to be effective in helping treat covid patients. I assumed this med had been given IV already and then they brought the pill in for her to swallow when she was starting to feel pretty sick. At that point, it had already become difficult to swallow things because of nausea. I hate when this happens!! It took her about 2 hours to get her 3 nausea pills down because she could only tolerate a tiny bit at a time. Poor thing:( It’s 1am now and she’s finally fallen asleep, so I will too.