Huntsman, vacation, chemo

Elizabeth got to spend some good days away from home and the hospital! She was able to go to girls camp for 2 days and enjoyed that.  We went camping with family this past weekend as well. Elizabeth was able to jet ski/inner tube, go 4 wheeling, and run around with cousins. She had a great time and was totally worn out after a day and a half, so we brought her home and she had some good resting days being at home just with her dad. As far as cancer life updates, we met with the radiation oncologist at the Huntsman and discussed radiation on the 2 lesions left on her lungs. He essentially told us that the diagnostic imaging accuracy is better than than the radiation imaging accuracy and he isn't comfortable doing lung radiation at this point because of the risk of damaging healthy lung tissue. He said that he will check back with our sarcoma oncologist after the next set of imaging (this will happen sometime early fall) and see if the lesions are still visible at that point. I had just optimistically assumed that her lesions would continue to shrink, so it was very discouraging to hear that cancer cells just stop responding sometimes and develop a resistance to the chemo regimen. We continue to pray that Elizabeth's tumors will keep responding to treatments and continue to shrink. Elizabeth's been diligent at taking the many vitamins I throw at her and it seems they're helping...her platelets came up to 204. We are sitting in the hospital getting day 2 of chemo right now. Yesterday was a particularly difficult day of Dr appointments and chemo and we were so thankful for the kind friends that brought us dinner. It really is a cancer battle...for Elizabeth, most of all, but also for the whole family. Elizabeth doesn't love having pictures of her posted, so I try to honor that. I am trying to be better at keeping updates on social media. I have felt so overwhelmed by just living through this that I don't really feel much like writing about it, so thanks for still checking this blog/Facebook page periodically. We are so thankful for the love, support and PRAYERS on Elizabeth's behalf. We know that God is working miracles because of your faith and prayers. We are also praying for new developments in research that will bring about better treatments for Ewing's sarcoma. I have been in touch with the Dr in Cleveland about some promising new research and will learn more about that during a seminar next week. I am trying to stay hopeful and positive. Love you all! Sending prayers for blessings and comfort for you in each of your personal challenges💕🙏