Saturday, July 30, 2022

one day left of cycle 6 chemo

We are getting day 4 of 5 day chemo today and we are SO excited to be in the BRAND NEW oncology clinic! It's life changing... Really. We have our own small room, with 3 walls and a door (no more curtains!!) and it has a TV and amazing recliner for Elizabeth. The parent's space is comfy too and some of the rooms have windows. (There was not a single window in the entire old clinic.) I am so thankful for the difference it has made for us during the long, challenging chemo hours at the hospital. We had to delay chemo a bit this round because Elizabeth came down with a cold and her platelets were just not recovering as quickly as usual. Thankfully, Elizabeth got in on Wednesday so that she can be done tomorrow and fly out to Seattle on Monday. She and Josh are going to be staying with her cousins at her grandparents house in Woodinville, near Seattle. The oncology team here was really helpful in getting the orders set up for her to get blood work done while she's away. (Unfortunately...blood work and transfusions are part of vacation time these days. 🤪) Still, we are so thankful so can go. She's been really looking forward to this trip. This chemo round has been a bit rougher, again, because of the cold. She's not totally over it yet and it has made a difference in her energy during chemo. She's pushing through and crazy tough, as always. We had another appointment with the doctor in Cleveland about the immunotherapy vaccine. They are hoping to start the clinical trial for this as soon as possible...he said 3 months is best case scenario and it may take up to a year. We thought that they already had all the information they needed for Elizabeth to participate, but it turns out that they also need another tumor sample, the one from her lung biopsy in March. We are working on getting this to them ASAP, but have already run into a few hurdles and we are praying that we can get all the info the Dr's in Cleveland need to have her ready for the vaccine once the trial opens up. The Dr there did say that Elizabeth is exactly the type of patient that they would like to enroll, so we will keep praying and working and hope for the best!!! Thank you for the love, support and prayers! Prayers are everything. We are thankful for all of you.