Monday, January 25, 2021

Hoping for proton therapy today

Last week I learned that a few times a month the proton machine needs to be adjusted to make sure it's totally precise and sometimes that means they have to delay proton radiation for part or all of the day. It turns out that today was one of those days.  We had planned to leave Seattle children's hospital at 11am for radiation in north Seattle, but then I got a call early this morning that the radiation machine needed adjustment today and so we are just waiting now. We have chemo from 4:30-7:30pm today and I am praying they call back and have the machine up and running and that we can find a way to work radiation in today somehow. If they can't fit it in today then we just add another day to the end of our scheduled days. I have wondered if maybe this is a little better for Elizabeth though. She hasn't had to do radiation and chemo at the same time yet and her nausea has been up and down. It's been tricky learning all over again how to control it with the med combinations they use here, but thankfully she hasn't thrown up since the first day. She has been able to generally to eat a little of each meal. She's doing physical therapy right now and the PT room here has a wall of windows that look over a beautiful little garden. It's too cold to go outside, but it's sunny and the view is nice. Elizabeth was pretty dizzy at the start of PT, (side effect of her meds and laying in bed) but she got over that in the first 10 minutes as she took things slowly and now she's doing some strengthing exercises. We'll see what the day brings!