Tuesday, January 26, 2021
Sick and tired (but thankful) and ready to go home...
After many phone calls and much coordination between the proton center and the team here at Seattle children's all day yesterday, the radiation machine was back up and running and we were able to get Elizabeth over to treatment at 9:30pm last night. We opted to do this because we're only 15 min from the radiation clinic when we're at the hospital and, more importantly, it means that we didn't have to add a day on at the end of her currently scheduled treatment plan. We're so thankful they got us in!! (Hopefully all the machines and software can cooperate for the next 3 weeks.🙏 ) It was dark and quiet at that hour in the hospital, but there was a flow of people in and out of the radiation center as people were eager to get their treatment scheduled for the day. We met a family with a 6 yr old girl from Montana there last night. We were really happy today when everything was on schedule. Elizabeth was able to get over to radiation at the 11:30 (her regular time) and was back in the hospital around 12:15pm. They got her chemo started right away and she's done with that now. We're still here getting post chemo meds until around 9:30/10pm and then we'll head home. As usual, Elizabeth feels much worse today. She's generally pretty sick on her last day of 5 day chemo and this time has been no different. The poor girl has been soo sick this afternoon. We both eager to get home and get her comfortable soon!